The carer Lucia is going home to Romania for Christmas, so this past couple of weeks I’ve been trying to find an agency or a carer to cover for her until January. Trafford council supply a long list of agency’s that we can use. After phoning around 20 to 30 I only found 2 agencies […]
Sorry this one has took so long but we are just reaching a month home and we have been so busy. We’ve been learning a lot of new medical care stuff for Debbie including the hoist and changing the water in the Balloons. That’s the balloons that keep the PEG feed in, not party balloons. […]
When people find out that Debbie has MS they respond in a few different ways. “I’m sorry” is the number one response, which is of course the the most obvious reply to anyone with an illness. I say this myself when someone says they are sick and I always feel that sorry is inadequate. I […]
So last week after 2 Months in the big house Debbie came home. I was a bit worried because of all the changes that we were going to have to deal with following the new symptoms and challenges. I couldn’t get anyone from the medical teams to talk to me until Debbie was released from […]
A few people have asked me what is MS. When I first heard it it I thought is that the yuppie disease? Nope that’s ME and I still get asked that a lot. Well The S Is for sclerosis which literally means scars. So MS is lots of scars. The scars are on the nerves […]
On the theme of being more happy around MS, I thought I would say a little about Debs before MS got to her. When I met Debbie 15 years ago she was a very different woman to the one I see now every day. Debbie was a PA in the Musicians Union in Manchester and […]
Husband for a carer http://a-husband-for-a-carer.tumblr.com/
Last night I was with friends and they were all telling me that they read my blog and I should keep it up. One friend Clare Collins says “you could do with a happy one” I have racked my brains all night and day and I think I found a happy story. At christmas 2013 […]
About 2 months ago I started a new job this was part of my great plan. Interview and place a live in carer and return to work. We could keep the house and Debbie would be cared for. Carer in place I started new job in IT project management. It was work from home and […]
When Debbie was first diagnosed with MS we had already had to deal with 8 years of miss diagnoses. The main thing her GP said was that Debbie had slipped disks. We pushed to get treatments but everything took so long 18 months her 12 months there. After 8 years of trying to get help […]
Multiple Sclerosis Carer UK 